More pics of the kids today

we are trying to truck along and I want to take as many pics as possible because I want to look back someday and see how far we've come...

Chase has crusted ooze and raw cheeks, chin, upper lip and I guess pretty much whole face. I am very nervous putting this out there for all to see. But if it weren't for itsan folks, I wouldn't do it. I've seen others blogs and this is what prompted me to do this. I may not accept comments though, because I don't want to read about what I am not doing right by someone who does not understand exactly what I'm going through.
In these pics, the two yr old has a puffy face. His face is normally more slender and he's got eyelids..not like in these pics. The girl is my only daughter who has perfect skin. Thank God! Really, I feel heart palpitations as I write this. Its hard to look at these pics..even for me and I see him all day.

We were up watching Netflix in the middle of the night because of the scratching. Chance could not stop and was drawing blood. I keep checking his fingernails for fungus. Chase woke up an hour later and so I fell asleep sitting up on couch with the two kids slumped over beside me on the couch. Its almost night again and I hope to sleep a little bit better tonight. We will see.
I'm really beginning to realize that Chase's face skin is super thin. It crusts over...forms thin scabs and then at night he fiercely rubs his face on the sheets and everything comes off and he wakes up to a glossy, ooze covered raw face.
Itsan forums have helped me so much in dealing with this. I felt so alone and guilty for staying home so much. Now I'm trying to deal with things day by day and not try to wait for this to pass too quickly. I want it to, but I have to remember, so I won't get disappointed.

no change yet, but even though they look like this, they still play

They sleep but they scratch while sleeping and the little one breastfeeds still. I know its one of the only things that comforts him when he is crazy itching.
He just turned 2. Chase will turn 5 by the end of this month.
Heres some pics...
All of these taken today July 8, 2014